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Difficult Decisions in Paediatrics: Joined-up Working in Wessex

2 November 2018 @ 8:30 am - 4:30 pm

Friday 2nd November 2018 8.30-16.30
DoubleTree Hilton, Chilworth, Southampton SO16 3RB

All welcome, cost for the day including refreshments £30/£50

A two part Channel 4 documentary about end of life decisions in children in the Wessex region, broadcast earlier this year, highlighted how complex and difficult these discussions can be. We realised there was an appetite for a forum through which joined-up working in Wessex could be facilitated, where multidisciplinary discussions could be held and where the difficult ethical issues raised could begin to be discussed. This day aims to explore some of the most challenging discussions that need to be had in paediatrics and discuss if and how a regional paediatric Clinical Ethics Committee might help future cases.

Outline Programme and Speakers
The ‘Tragedy’ of Charlie Gard
Our plenary speaker is Jonathan Montgomery, Professor of Healthcare Law at University College London, formally University of Southampton. Jonathan is Chair of the Nuffield Council on Bioethics and Chair of the Health Research Authority

  • Difficult Decisions: A Parent’s Story – Stephanie Nimmo
  • Conflict, Moral Distress and Difficult Decisions – Can We Look After Everyone? – Peter Wilson
  • The DGH Perspective – Amanda Freeman
  • The Role of the Clinical Ethics Committee – Angela Fenwick
  • “Mind the gap”- Ethics in Novel Clinical Scenarios – Anneke Lucassen
  • Conflict and Communication – Robert Wheeler
  • Moving forward with difficult clinical decisions for children with life limiting conditions in Wessex -small group discussions


2 November 2018
8:30 am - 4:30 pm
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